Posted 7/12/2009 11:53 AM (GMT -6)
I'd also like to extend a welcome to you. I'm afraid that I can't answer your questions either as I don't have any CNS involvement, but like Lynnwood, others here will hopefully be able to give you some opinions. Have you posed these questions with her doctor? If you don't go to her appointments with her, I'd highly recommend it. And go in armed with a written list of questions. A good rheumy will take the time to answer all your questions and concerns. What meds is she on?
She's fortunate to have a caring and concerned husband willing to do his own research.
This forum is not only a place to look for opinions and information, but also support and understanding. One of the most coveted benefits of this particular forum is the ability to come here and vent, scream, whine, and cry in a way that we can't in the real world. And at the same time we help each other with our own experiences and research.
Your wife might benefit from joining us too. Lupus can be a tough road to travel and having the support of others, who become close internet friends, can be almost as helpful as the meds we take. And we are proof that there is life after lupus.
I hope we see you again.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex