Posted 7/17/2009 7:47 PM (GMT -6)
So sorry you're suffering. We sure know what it's like. I've had terrible pain with my Fibromyalgia. Not so much with my Lupus. But like the others, if I did have Lupus pain only higher doses of prednisone would help me. For my Fibro pain the only thing that helps is an anti seizure med called Neurontin. Looks like you're on medication for your RA. Is it your RA that is causing the pain, or your Lupus? Both? It's hard to know which one is the culprit sometimes.
Hot or warm baths might take the edge off. I've really had a hard time finding any real relief too. And yes, I feel like I'm going to go loco sometimes. I wish there was something we could do or take to make it all go away. It's not easy living with this and it seems to get harder each year.
Please know we're here for you and that we truly do understand.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums