I have always been an easy bruiser and my thighs are covered with petichiae. Before October 2008 my platelet range was low normal. Normal range is 140-440 K/uL. October 21
my platelets went down to 47, by January 27 my platelets went down to 14. My rheumy took me off Imuran. My platelets returned to near normal and then dropped to 70. He referred me to a hematologist and scheduled a spleen ultrasound. I was
freaked out! The ulrasound results came back normal. When I met with the hematologist,
he said the low platelet count was probably due to the meds or the disease. The bone
marrow biopsies were done 3-24-09( yes they are painful, but the pain is short lived) and
everything was normal. The Hematologist seemed stumped. I asked him about
clumping.I always do a lot of research and read articles about
it. He said the next time you have your blood drawn if the platelets are low have them do a retake using a citrate tube.
Two weeks later I had my bloodwork done at my Rheumys and my platelets were down to 14
again( I get myresults right away). Right away they did a redo using a citrate tube and my
platelet count was 191. SHOCKING!!!! That is when I found out that it was
openIA due to EDTA. Like I said it is rare 1 out of 1000 people.
I wonder though how many people have unecessarily have gone through unecessary
testing. I am back on my meds and haven't had any adnormal platelet counts.
I WISH YOU WELL :)
Post Edited (crazykitty) : 7/20/2009 10:56:49 AM (GMT-6)