Hey ginny, I get it from my liver, but its just slowly creeping down. My rheumie does a serum electrophosphoresis on me due to my polyglandular dysfunction to make sure that I don't have POEMS which puts you at high risk for multiple myeloma. You can have myeloma without having a positive serum electrophosphoresis, but withoutme having extreme symptoms (except for spine, which they've examined) they aren't worried.
Barbs got good advice and I think she is right. You think one thing, then you see the oncologist and they have their way of doing things. There may be other things they want to do bloodwork or scans for.
My platelets being low could be to damge to my spleen and lymph nodes from autoimmune disease. I've had several lymph nodes swell up due to benign hyperplasia so far, and have more that were slightly illuminated on a PET scan. These can be from a variety of non cancer causes. So there may be other tests that might shed light on whats going on. I still don't know whats going on with all my lymph nodes, but whatever it is, its mild and slow in progressing, so they just watch it.
If a med has really damaged your liver and spleen, you could get copies of labs, and it may take a fairlylong while for the liver to recover after quitting meds.
I hope that they figure it out and you don't have to go through the biopsy, but if you do, I hope it is negative.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids