Posted 7/18/2009 9:27 PM (GMT -6)
Hello SmartyPants, welcome to the forum. Well, it sounds like you need new doctors. None of them are taking you seriously. Did you get a positive Lupus diagnosis or is this still being decided? Your symptoms do sound like Lupus could be a possibility. Are you on no other medications except the Tramadol? You really need to get a good rheumatologist! Sometimes you have to shop around till you find one you like.
You MUST not spend time in the sun or the tanning beds. Huge no-no. With Lupus, you basically have to treat yourself like you're allergic to the sun.
Don't trust what "wikipedia" has to say. Any topic can be written by any person. It's not trustworth. Stick with websites that are associated with hospitals or associations like The Lupus Foundation of America. www.lupus.org.
What is your next step? You really need to get a solid group of doctors to work together for you. Also, keep a diary of all your symptoms every day and anything else odd that pops up. Take pictures of the rashes you get just in case you go to a doctor and that day the rash is gone!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums