Posted 7/20/2009 3:41 PM (GMT -6)
I hope everyone is doing as well as can be. This is not really a rant, just a need to talk to someone. I have the basic mctd overlap syndrome-sle, scleraderma and polymyocitis- plus reynauds and pericardial effusian. I have fluid on my legs and am on lasix and wear pressure hose for that. I also have ulcers on my lower legs that I am having to go to wound care once a week for. My rheumy tells me that I do not seem to be hurting as much as she thinks I should be and I feel fortunate about that, but I do hurt. I am only 45 and all this wears on me sometimes-sometimes I get so down emotionally over it that I occasionally break down and cry just to relieve pressure (my rheumy has asked me about depression meds before but I denied needing anything). My hubby is super supportive and gives me anything I need but I feel like I have to be strong when he is home because when I do lose it it scares him. Everytime possible depression is mentioned he immediately thinks it's because he is or isn't doing something. I don't really have anyone to talk to about the way I feel because I don't want to worry my family, and I don't feel that anyone can really understand unless they are going thru it also. I'm not looking for pity or anything, just needed to talk to someone.
Thanks for bearing with me
SLE, Lupoid arthritis, Mixed Connective Tissue Disease, Scleraderma, Polymyocitis, Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.