out of spoons, just a little whine

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Regular Member

Date Joined Feb 2009
Total Posts : 108
   Posted 7/22/2009 9:06 PM (GMT -6)   
the title says it all . . . on top of having my first cold in YEARS and rampant allergies (thank you Holiday Inn for the moldy A/C in my room - the 15% off my bill for my "troubles" is much appreciated - NOT!), i think i am in the beginning of a flare . . . sucks . . . i hate feeling like i have run a marathon just getting out of bed & walking down the stairs . . . i know we are all in the same boat - i just wish we had a few more people who could row for us so we could enjoy the ride every once in a while ;)

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SLE, Sjogren's, Reynaud's, Peripheral Neuropathy

Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 7/22/2009 9:22 PM (GMT -6)   
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 7/22/2009 9:45 PM (GMT -6)   
Hey Anne! So sorry your starting a flare. I hope it passes quickly for you! Sending hugs your way.



21 years old...Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...


Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 7/22/2009 9:50 PM (GMT -6)   
Lupus stinks, no doubt!! Hope you feel better quick! Judy

Regular Member

Date Joined Apr 2003
Total Posts : 104
   Posted 7/23/2009 11:36 AM (GMT -6)   
Hope your flare passes quickly and you feel better soon!
MCTD (SLE, Scleraderma, polymyocitis), Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
 Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 7/23/2009 9:18 PM (GMT -6)   

Sending some good thoughts your way. Hope you feel better, soon!
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
7-11-09 Started CellCept - so far it's like I've been given my life back!
7-21-09 Last day of CellCept for now - allergic reaction - darn - and it was working!

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 7/23/2009 11:14 PM (GMT -6)   
Hi Anne:
I'm sorry to hear that you're not feeling well.  I hope that some rest and relaxation will do the trick and you'll be back to normal.  Don't you just hate it when hotels have "issues".  Know that I'm thinking about you and sending you lots of prayers.  Take care and I hope you feel even better tomorrow.
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Regular Member

Date Joined Feb 2009
Total Posts : 108
   Posted 7/24/2009 5:18 PM (GMT -6)   
Hi All . . . thanks so much for the good wishes :) I have had a couple days of "horizontal therapy" where I haven't had to go in to work and it has done me a world of good . . . 2 1/2 weeks on the road for work is a killer and I am sure that is what triggered it all. 65 hours of work one week, 70 hours the next and by the time I got home this week, I was already at 40 hours of work . . . fortunately the next couple of weeks should be more "normal" so that I can get back on track . . .

Thanks again!

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SLE, Sjogren's, Reynaud's, Peripheral Neuropathy

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 7/25/2009 5:10 AM (GMT -6)   
I am sorry you are having problems. I hope you feel better soon.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 7/31/2009 8:52 AM (GMT -6)   
Hi! Anne,
I would give you a spoon if I could! yeah Want some "jeez" with that whine? tongue
P.s. I tell my family the more I whine, the better I get at it, too
pps. hugs

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 7/31/2009 9:10 AM (GMT -6)   
Glad you're feeling better Anne.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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