Thinking of you all

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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 7/25/2009 11:56 AM (GMT -6)   
Hi everyone. I do manage to get to the trivia game because it only takes a moment. But even that causes stress on my body. I've spoke on the phone with Barb, and she is having a difficult time getting help for Nakita, with her pain control. I do know the frustration of dealing with the military.
Anyway I just wanted to say hi to everyone. I have not stoppped thinking of you and praying for you. I just really need the dr's to give me something to help me get through the day. I have never been so tired and trying to post messages on here I'm afraid I am going to say something stupid. I just don't trust my own mind these days. (I get confused easily).
I will continue to pray for everyone here weather you hear from me or not you are in my heart
God Bless
Bunch of medicine and I'm sick a lot!


Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 7/25/2009 2:04 PM (GMT -6)   
So good to hear from you Carol. I'm sorry you are struggling so very much! How's your brother? Any improvement? You are also in my heart and prayers always. Love, Judy

Veteran Member

Date Joined Jun 2008
Total Posts : 675
   Posted 7/25/2009 11:53 PM (GMT -6)   
Thinking of you, Carol, and wishing better days for you. 
hugs and blessings,
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 7/26/2009 7:42 AM (GMT -6)   
((((Carol)))) I sure am sorry that ur having such a tough time. I think of u often. Wish those docs would put their heads together and help you! Sometimes it seems to me that the bridge ur crossing is just too darn long. I really appreciate you using your last spoons to posts. I hope that you're able to build up more spoons and soon! You're in my prayers. Love ya, Donna
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, Colitis, stage 1 kidney disease  Rx: Cellcept, plaquenil, prednisone, celebrex, lisionpril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, xanax, ambien, neurontin, tylenol arthritis, flexeril, nasonex, phenegren, vitamins, Acupuncture.  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 7/26/2009 11:57 AM (GMT -6)   
Hey Carol! It is so great hearing from you. I have really missed you posting on here. i pray things get better and so sorry about the rough time! Love ya girl!



Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel

Ultram, Prednisone, Lupron, Zofran, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...


Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 7/26/2009 5:58 PM (GMT -6)   
Carol, I wish things were better for you. I know how hard it must be for you to have even made this post given everything that is happening.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

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