Posted 7/30/2009 5:16 PM (GMT -6)
I saw my ENT today and he said that my hearing and balance was good, but that he felt that I do have a real problem and that unless they test it right when my hearing goes out, it won't show up. He said that there is an autoimmune problem that effects the ears and balance and that if they don't test right when it is happening, they can't document it and they can't do what they need to do, like get me on stronger immunosuppressants, to prevent hearing loss.
He also talked to me about Minears, which my mom had and he said it is hereditary and also autoimmune, and that it will go away but can be really irritating, but he can't say that is the problem unless they rule out the autoimmune thing.
Does anyone know about autoimmune problems attacking the ears eyes and balance centers and effecting hearing? Outside of Minears, I never heard of anything like that?
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids