Hi! I am also a Crohnie and Lupus patient - I have been on Immuran many times, first time I was one it for 3 years and had no problem until I got multiple sinus infections and had to go off, was in remission for almost 2 years till a Crohn's flare.
Went back on Immuran last fall and had serious issues with it - I started out at 50mg with no major problems (tiredness, some joint/back pain) after 6 weeks went up to 100mg (my full dose) - I got massive migraines, my dr. backed me down to 75mg and stayed there for 4 weeks and then went up to 100mg - no real problems phsyically, just mentally - I felt like I had massive PMS - I had hot flashes, insomnia, depression, etc.
My GI yanked it and of course I flared about 6 weeks later. Needless to say I was not doing very well - went on Pred and Entocort and after the discussion with my Rheumy my GI prescribed MTX - Injection. I have been on it for a month now and am feeling MUCH better. I have a few side effects from the MTX (some headaches, nausea the day after the injection and feel a little hungover that next day) but my bathroom trips, bleeding and joint pain has pretty much disappeared - I am honestly shocked at how much better and how much faster I have seen results.
I will start tapering off my 5mg of Pred and the 9mg of Entocort this week!
Questions let me k now and I will be happy to answer as I can.
Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease (and all the lovely things that come with it) - January 2003 (problems since early 1990)
Normal Meds: Ambian 10mg, Flexeril 10mg as needed, Plaquenil 400mg, MTX 25mg Injection, Probiotics
"Extras" Right Now for Crohn's Flare: Pred 5mg, Entocort 9mg