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New Member

Date Joined Aug 2009
Total Posts : 8
   Posted 8/7/2009 5:25 PM (GMT -6)   
My name is cg and I am new to this forum. I have systemic lupus and today and yesterday has not been a good day for me as I have been in so much pain and just crying constantly and very depressed. I have only had lupus and I still can't get use to the idea that I have this chronic illness. I have been having such a hard time dealing with this that I need to be with others that know and feel what I have been going through. my wonderful husband has been so very patient and supportive but I don't really think he understands what i go through. we don't get to be together much because he works over 40 hours a week and the only time that I get to spend with him is on the week ends, so I am very lonely when I am by myself. This is why I have decided to join here to meet others that are going through the same thing and to make some very good close friends.
 I can't wait to meet you all
cg cry

Regular Member

Date Joined Jul 2009
Total Posts : 42
   Posted 8/7/2009 6:26 PM (GMT -6)   
Hi cg and welcome you will definatly find the support you are looking for here there are alot of kind poeple with alot of knowledge about this illness . I am so sorry you are in so much pain right now do you have a good doc? I just got over one of the worst flares it took getting some IV steroids to make my pain go away!It is great that you have a supportive hubby that is so important I will keep you in my prayers and I hope you get some relief soon.....nona
dx Lupus,whith  brain, kidney ,heart invovment
Rhumitoid Arthritis ,seizures ,autoimmune hepatitis.
Meds-planquanil, lamictal ,lopressor ,imdur ,nitro, vtaminD ,metformin,
synthroid, lortab, phenergan, xanax ,prednisone ,kenelog injections
cytoxan, remicade
  Never Give Up!

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/7/2009 6:33 PM (GMT -6)   
Welcome cg,

You are among people who truly understand your pain. It is great that you have a wonderful
supportive husband. I am blessed too with a supportive husband, family and friends.

Coping with a chronic illness can be stressful. I excercise when I can, read, hangout with
my friends. It is important that you know your limitations, pace yourself, try not to over
do. Take one day at a time. Try not to worry, I know easier said than done. Get enough
rest. I always find if I do too much one day, I am paying for it the next.

I am so sorry you are hurting. What medications are you on?
Hope you find pain relief soon

 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements

New Member

Date Joined Aug 2009
Total Posts : 8
   Posted 8/7/2009 6:47 PM (GMT -6)   
I have just a regular doctor because I have no insurance and for the pain he has me on hydro and I am back on prednizone, I am so very glad i stumble across this site because i have friends now thanks a bunch.
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