Hey Lucy, one way to find out if it's your lupus or Fibro is to have a full body bone scan done. I had to do this because we just couldn't tell what was causing my pain. The bone scan was SO COOL! Not a single joint "lit up" on the scan which meant that it was my Fibro causing the joint pain (muscles, tendons, ligaments). Nothing going on with my bones and joints. It might be an option worth considering.
How do I handle all this crap? It manifests itself as anxiety and panic. I don't manage it well. I'm seeing a psych right now and hopefully it will help. I wish I had the magic bean. I guess other coping strategies are keeping a close support network, surrounding yourself with pleasant people and pleasant things. Prayer, meditation. I'm not a good person to be dealving out advice on this! LOL. I'm in the same boat.... Sending you big hugs Lucy.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
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