Vitamin D deficiently, could it be that simple????

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New Member

Date Joined Jul 2009
Total Posts : 11
   Posted 8/13/2009 9:13 PM (GMT -6)   
Went for blood work last week. Been having all sorts of pain, we thought it was a bad flare up. Doc says blood work came back that I have no Vit D in my body. Reading up on it of course, says it can cause big pain in muscle and bones especially in auto-immune disease.
Could it be that simple? Take some vitamin D an feel better. What do ya think???
SLE Lupus, dignosed 13 years. I take Celebrex everyday, Inderal for the migrains, Plaquenil on and off ( I know thats BAD), Somo for muscle pain. Ativan for the wonderful anxiety, and ambiem as needed. And a Margharitta here an there.....

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 8/13/2009 9:33 PM (GMT -6)   
I hope it is that simple for you! That would be great, wouldn't it?
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

alli sunshine
Regular Member

Date Joined May 2009
Total Posts : 40
   Posted 8/13/2009 9:39 PM (GMT -6)   
It could very well be the deficiency that is causing your pain. I was having horrible pain all over last fall and winter, to the point that I could hardly walk at times. I had blood work done and my vitamin D level came back at 7. I started taking 1000 mg a day, and my pain greatly diminished. I do believe that that was the cause of a lot of my pain. If you also have extremely low levels, it wouldn't hurt to try supplements and see if they help.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/13/2009 10:56 PM (GMT -6)   
Bloodwork revealed I had a vitamin D defiency. My rheumy prescribed 50,000 IU
weekly for 2 weeks to bring my level up. I now take 1000 IU daily. To tell you the truth
I can't tell any differance. I still experiance pain but I also have fibromyalgia with alot
of other medical issues going on.

Hope the Vitamin D wotks for you!

 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements

Regular Member

Date Joined Jul 2009
Total Posts : 42
   Posted 8/14/2009 1:32 AM (GMT -6)   
Hi, I also found out that I have no vit D at all I have been taking 50,000 iu twice a week plus 1000 iu over the counter daily in 6 mo that has risen my vit D from 0 to 7 and it should be at the least in the 40s my doc says this disease sucks the vit D right out of you I have been having alot of pain dont know if its from vit D deficiancy or not I hope you can get your level up maybe it will give you some relief of course if we could get some sun that would help alot I have been fighting this issue for months I dont know what the answer is but I hope your level comes up I sure would like to know if it makes you feel better please keep posting on this subject I am very curious about it thanx so much .......nona
dx Lupus,whith  brain, kidney ,heart invovment
Rhumitoid Arthritis ,seizures ,autoimmune hepatitis.
Meds-planquanil, lamictal ,lopressor ,imdur ,nitro, vtaminD ,metformin,
synthroid, lortab, phenergan, xanax ,prednisone ,kenelog injections
cytoxan, remicade
  Never Give Up!

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 8/14/2009 9:22 AM (GMT -6)   
You will need to get a script from your doctor for a very high dose of Vit D.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 8/14/2009 12:45 PM (GMT -6)   
funny you should mention this..i just saw an article on Yahoo not so long ago about people in general having a major lack of vitamin d...i could start taking supplements right away and document any difference you notice...and some people with Lupus have a hard time with the sun like me...when i go out in the sun i get a rash now mostly on my i am avoiding it like the i bet we all (those with Lupus) are having a lack of vitamin d...

New Member

Date Joined Jun 2009
Total Posts : 18
   Posted 8/14/2009 12:53 PM (GMT -6)   
i am afraid it is a bit of a chicken and an egg thing
there are some articles that suggest that it is instead the Lupus that can be related to the drop in vit D. Some suggest that it is the other way around.
I guess it doesn't really matter. If you are low, you have to get some in you. The problem though is that Vit D can only be synthesized by being in the sunlight.
And I am not sure about you, but sunlight and lupus don't really go together.

Good luck

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 8/14/2009 9:56 PM (GMT -6)   
There are three different types of vitamin D, D1, D2, D3 and its really important they test all three and replace the right vitamin D. Its become really trendy to just test the overall vitamin d level and just give a straight vitamin D supplement. According to my bioidentical/wellness doc, who manages my vitamins and hormones (vitamin D is a hormone really, not a vitamin, and it controls the proper or improper regulation of the immune system supposedly. It is also an immunosuppressant, which is why docs like to give it and people with autoimmune disease like to take it along with the fact they may need it. I don't see how a disease could suck the vitamin D, but like country boy says, some forms of vitamin D needs sunlight, but very little is required from what I understand. Still, its easy to not get any sunlight when you have autoimmune disease.

I take vitamin D3 25, but really Mayo only tested my D2 and D3 and never tested my D1, which would have been better. I don't notice one bit of change taking it, especially since I eat dairy which contains plenty of vitamin D. I did notice a big change in pain, much pain relief taking vitamin B6, which works on the nervous system. Apparently I lack that. Oddly, my B12 is very high and for no good reason. The B vitamins can have a real positive effect on the nervous system and helped me alot with my peripheral neuropathy. I guess Ijust don't metabolize the b vitamins very well, so I need lots more. It might be good to see if they wll check the B ones ifyou have alot of pain. Taking B6 worked much better for me than taking lyrica or some other med. Apparenty I had a defciency.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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