If you have kidney involvement then your swelling is probably from protein loss. The less protein your kidneys leak the less fluid you will have, at least that was the case with me. It did take a long time though. I know it is frustrating but hang in there, my swelling is now gone and I thought it would never end too.
DX: Nephrotic Syndrome, Membranous Nephropathy (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
DX: Hpercalcemia, Hyperparathyroidism, Gout 2009