Hi Supernat, welcome to the forum. I can completely understand the limbo you're in right now. I went for 10 years with symptoms until I got a diagnosis. You have a rheumy which is great! You're ahead of the game already. Do you feel that they're being a good advocate for you? Are they proactive and determined to figure things out? If so, that's wonderful. Stick with them and you will eventually get the treatment you need. If not, drop them like a sack of potatoes and find a new one. Don't waste time with a specialist that is dragging their feet.
Your symptoms do sound like Lupus, but they can also be many other AI diseases. That's why it takes so long to get a diagnosis. They have to be so sure of the disease in order to treat it properly.
Have you had any blood clotting testing done? Your bruising and red splotchy marks perked my attention.
HOw is your pain? Make sure you're getting medication to treat any pain you have. Keep a diary of all your symptoms and take pictures of any rashes you get. We're here for you any time, okay? Please keep us posted,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums