question about heat and lupus

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cookie monster1
Regular Member

Date Joined Aug 2009
Total Posts : 41
   Posted 8/28/2009 10:38 PM (GMT -6)   
From what I understand the heat effects lupus.....does anyone know if it heat or being in the sun?  Does high humidity have any effect?  And I assume the cold does not bother it?  Oh and what does the heat/sun do?  Thanks for your help!!!  :-)
cookie monster1

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 8/28/2009 10:50 PM (GMT -6)   
When you have Lupus, anything that normally stresses the body stresses it 1000x more.

If normally you might get a little hot, now your body might have a core temperature change of 4-5 degrees. If you'd maybe have no effects when in the sun, now you might be exhausted for 3 days. If normally the cold is fine, now you might have stiff swollen joints till you get warm. If normally high humidity doesn't phase you, now it might be straining a little to breathe.

Lupus is the disease of 1000 faces -- it acts a little differently for everyone. Sometimes it you just have to figure it out with trial and error. For instance, I'm ok with a little more sun *if* I'm eating and sleeping ok....otherwise I'd be exhausted and aching for quite a while.

You just have to practice and figure out what works ok for you --- then here's the *really fun* part -- some days everything just reacts differently than it ever has before!!!! So slow and easy with new things and with changing what you do...for me, if I don't limit myself to 1 thing a day, I usually crash. It may be dinner out, or the laundry, or paying bills --- can't do all 3 in one day!

(And the bad part about sun is that a little bit one day you might not feel for 5 days, then you crash out! So little dosages of primarily shade and sun-resistant clothing work best - and sunscreen.)
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

Regular Member

Date Joined Jan 2008
Total Posts : 159
   Posted 8/29/2009 1:11 PM (GMT -6)   
Hi lynnwood and cookie, I have a horrible time with heat. I thought it might be from the Cymbalta. I sweat so much my hair is soaked. Is this the disease or is it the Cymbalta( or both)? It is very frustrating shakehead
Any replies would be appreciated. This is almost debilitating.

Thanks for any help. Laura
Cervical spine surgery 2004, C-section 1986, Cholecystectomy 1999, Thoracic and Lumbar injury 2000. Anxiety/depression 2008. Fibromyalgia 2009, Thyroidectomy 2008. Degenerative disc disease. IBS. Asthma, Rheumitoid Arthritis, Sacroillitis, Scolylosis, disc bulge in L5/S1.possible ankylosing spondylitis. Meds: Lisinophil, xoponex, symbocort, pulmocort, troponal, vitamin 2000 D, Vitamin B complex, Hydrocodone, Tylonal Arthritis, Cymbalta.prednisone and Lyrica

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