Hey all - had my follow up appt. with the Doc at Ohio State. It appears I have Celiac Disease as I carry two genes and a positive antibody test for gluten. Will see what happens in the next 6-8 weeks, when we redo some of the lab work and continue on the gluten free diet in the meantime. He believes my osteoporosis and Vit D deficiency is a result of the Celiac, among other vitamin deficiencies, as celiac keeps you from absorbing nutrients. His vitamin and supplement protocol, along with the gluten free diet, should, over time, make me feel better and improve my health. I am curious to see what it does for my fatigue and pain, which have been pretty bad lately. Feel like I'm in a perrenniel flare.
He felt my trouble with taking the megadoses of Vit D had to do with my body's inability to absorb it properly. He has me on 1,000 twice a day, along with the other things. I've been eating gluten free for 2 wks since getting the lab work done. Lost 4 lbs. Dh is doing it with me for now. Sometimes it seems really hard, and other times not so bad. I will miss the joy of baking - especially bread. But I would do (or not do) just about anything to start feeling better or at the very least, keep my health from continuing to worsen.
I know some of you have Celiac along with Lupus/UCTD - did you find some relief or improvement after becoming gluten free? Thanks in advance -
diagnoses: mono 1972; postviral CFS 1997; fibro 1998; UCTD 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn