Hi everyone, thought I should share how my week has gone. I woke up Saturday with a fever and the most unbelievable body aches I've ever experienced. Thought I had the flu. Sunday was worse, fever got up to 101.4 and my knees were in a lot of pain. Saw my family doctor on Monday and he wasn't 100% sure it was the flu because I didn't have any chest or lung involvement and my fever kept coming and going. Had my weekly CBC blood work done that day and a few hours later I got a call from my rheumy saying that my platelet count had dropped to 17. I told her how I was feeling and she also didn't think it was the flu, but a really bad flare up in my Lupus. To combat the flare and help my platelet situation she told me to take 50mg of prednisone Monday night.
Tuesday, woke up feeling WAY better. Fever was going, joint pain was gone. Did another CBC to see if the pred did anything to my platelets. Internal med doctor called me and told me to head straight to the ER because my platelets had dropped to 10. The ER knew I was coming and they had a bed ready for me. I was going to get a platelet transfusion and IV steroids. So, before starting the transfusion, ER took another CBC sample and wouldn't you know it, my platelets climbed back up to 25. So the pred I took the night before kicked in.
I was discharged with instructions for the week. No transfusion, no IV steroids. WHEW! I'm on day 4 of 50mg of pred. I am not experiencing any typical pred reactions yet. I'm shocked. I thought by now I'd be willly nilly off the walls. I guess my body desperately needed the boost. My platelets are going up, but it's slow. I have no idea how long I will be on this dose. I truly look like a Dalmation with all these bruises. My arms look like I'm a drug user from all the needle pokes. I've been to the lab every day this week. So my quiet Lupus is no longer quiet. I haven't flared like this ever. I didn't even recognize the flare. Thought it was the flu. I'm disappointed but not shocked. I knew someday I'd be dealing with it.
Anyway, that's the update on me. I'm tired, and I have a wedding to shoot tomorrow. Trying to get some rest in today and be ready. I'll update as things change. Thanks for reading if you got all the way through it!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content. Phillipians 4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, PTSD. Prednisone, Imuran, Plaqunil, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6,
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