I've been feeling really well lately. My doctor has lowered my prednisone to 2.5mg daily and wants me to come off it next month. I started the new dose about
a week ago. Still on the plaquenil. However, just this past weekend, I was exhausted! Sunday I felt terrible- achy joints, exhausted, massive headache all day, didn't move from the couch.
This morning I felt somewhat better and chalked it up to the fact that I forced myself to get up for work and moving around may have made me feel better. However this evening I feel like I've been hit by a truck and I noticed before I left work that my lymph nodes that are right above my clavicles may be swollen. They aren't red or tender- just swollen and my shoulders are achy.
Could this be lupus related? I'm assuming I should take myself to the rheumatologist tomorrow too.
One more thing, I thought my rheumy would be testing my ANA and antibodies more frequently. I came up positive the first time I saw her but none of the other antibodies or rheumatoid factor came up positive. Hence the diagnosis of UCTD. Should this be something she repeats more frequently? The first time I saw her was in May, I've seen her since then pretty regularly and she hasn't done anymore testing besides a creatinine, UA and CBC when I have seen her since then. Also, should I ask for a C3 and C4? She's never done those tests, either.
I hope everyone is doing ok! Anyone with any advice, thoughts, etc?
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Prednisone, Vitamin D