Update on Barb

auntkay

Veteran Member

Joined : Apr 2004

Posts : 1212

Posted 9/15/2009 7:12 PM (GMT -7)

Hi everyone, I just wanted to leave a post about barb. She called me tonight after feeling very ill all week she's back in the hospital. The number to her room is 301 319-8447 if any of you would like to call her she can better tell you whats going on with her. I do know she's on the cardiac ward and is having proplems with her heart so keep Barb in your thoughts and prayers.

Kay

hippimom2

Veteran Member

Joined : Jul 2005

Posts : 5403

Posted 9/16/2009 12:19 PM (GMT -7)

Thanks Kay. Barb, you are in my thoughts and prayers. I'm so sorry you are back in the hospital.

dx: UCTD (lupus), sjogrens, reynauds,

meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,

doxepin, folic acid

Lynnwood

Veteran Member

Joined : May 2005

Posts : 7782

Posted 9/16/2009 12:24 PM (GMT -7)

Barb had fluid around her heart again - ultra high blood pressure & heart rate. Both blood pressure & heart rate are lower now, and they are changing some of her regular meds in hope of avoiding this happening again.

She hopes to be released tomorrow, and sounds pretty hopeful.

Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

redrose77

Veteran Member

Joined : Sep 2005

Posts : 2573

Posted 9/16/2009 1:02 PM (GMT -7)

I am so sorry Barb is in the hospital again and hope she is released ASAP.

Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

aimsgirl16

Veteran Member

Joined : Jun 2008

Posts : 1470

Posted 9/17/2009 4:40 PM (GMT -7)

Hey Aunt Kay and Lynnwood, thank you for updating us on Barb! I pray she is getting better quickly and so sorry to hear she is back in the hospital. Does anyone have any more information on her today?

Amy

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

^{Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C}

The Old Normal is no more so I and we have to find a New Normal...

Barbara Lee

Veteran Member

Joined : Sep 2003

Posts : 2889

Posted 9/18/2009 1:36 PM (GMT -7)

Hi All:

YAY!!!!! I'm home, just got home about 2 hrs ago. I'm feeling much much better. Not only did I have fluid around my heart I also had a kidney and bladder infection. I'm on antibiotics for awhile yet. I've also started a new medication for my heart so hopefully things will improve with it.

How you're all doing well and thanks for your well wishes and prayers. I'll post again later.

Hugs,
Barb

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Ginny

Veteran Member

Joined : Feb 2003

Posts : 5514

Posted 9/18/2009 4:18 PM (GMT -7)

Barb! So good to know you're home and feeling better. What a scare. Take it easy friend! (((((hugs))))))

I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, PTSD. Prednisone, Imuran, Plaqunil, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6,

Moderator for the Lupus and Fibromyalgia forums

aimsgirl16

Veteran Member

Joined : Jun 2008

Posts : 1470

Posted 9/19/2009 6:03 AM (GMT -7)

Oh Barb!!! I am so glad you are home :)! I know you must be relieved to be back at home...things still going well with you today?

Amy

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

^{Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C}

The Old Normal is no more so I and we have to find a New Normal...

python

Regular Member

Joined : Apr 2003

Posts : 104

Posted 9/19/2009 8:27 PM (GMT -7)

Barb, I'm so glad to hear you are home and feeling better! I hope the new meds really help.

Donna

MCTD (SLE, Scleraderma, polymyocitis), Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.

Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.

Lynnwood

Veteran Member

Joined : May 2005

Posts : 7782

Posted 9/22/2009 1:45 PM (GMT -7)

I actually got to go visit with Barb yesterday!

She's in good spirits and looks a lot better than I expected. It was great to be able to get together. I was up that way visiting family & kidnapped a car to go see her.

Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

jhmom

Veteran Member

Joined : Oct 2004

Posts : 2244

Posted 9/22/2009 7:02 PM (GMT -7)

Barb, I am glad you are home! Praying you continue to feel better and the new meds work!! (((hugs)))

Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

cured4real?

Veteran Member

Joined : Dec 2005

Posts : 1950

Posted 9/22/2009 9:43 PM (GMT -7)

I got the urge to say some special prayers for you this week and on the weekend. I'm so sad you got sick but am glad you got through it kind of fast and got home. I haven't been on my pc much lately. My steroids are running out and I'm running out of steam...

I hope you are well on the way to being back to normal now and want to send you ((((hugs)))) and let you know that you are in my thoughts and prayers always.

Love, Marji

_{Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB}

_{Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids}

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