I saw my rheumy this morning and we talked about my platelets (which are in normal ranges now, but have fallen in the last week). She tested my antiphospholipid antibodies to see if they're positive and they are - high positive. It's very clear that my Lupus is very active right now. I've been on 50mg, 40mg, and now 20mg of prednisone for 3 weeks now and I should be blowing up like a balloon, but I'm not. I'm losing weight. 7 lbs in the last 2 weeks. When I told my rheumy that her eyes got big and she said that isn't normal and that weight loss like that is a clear indicator of highly active disease. She wants me to monitor my weight closely. She increased my Imuran too. I'm a wreck. The weird thing is that I don't feel dreadful. I'm not 100% but I can function.
Anyone else experience weight loss like this?
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content. Phillipians 4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, PTSD. Prednisone, Imuran, Plaqunil, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6,
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