Posted 9/23/2009 7:05 AM (GMT -6)
I am very new to this forum, so wanted to check in let you all know that I really want to participate.Computer dummy,so please bear with.cerebritis improving-slurred speech gone and balance better.Saw my Ent yesterday, and after 2 surgeries in last 5 months,which were pretty scary with all that has been going on, bet just overwhelming fungal and bacterial infections.Got a great review, and now can get my IV cytoxan,which I am almost 2 treatments late for,and probably cause of present cerebritis,and general sle flare. Was so happy went and overdid on way home from appt.paying today,but was worth it,and will rest juice and elevate swollen legs today. my oldest son is just home from college after completing his Masters. He understands chronic illness-born 3months early,cerebral palsy,seizure disorder,very mild autitistic reactions.so you can imagine how proud I am of him,He is now going on to law school, after a much needed break.He said yesterday, mom google the spoon theory,I said just tell me,he said you need to read it,so I did,laughed,cried,and for the first time had a concrete way to think about myself, but gave me a concrete way to think about others.Probably the most valuable medicine I've ever had. Only about 10 min. of reading,and now a lifetime of understanding myself,and others.God Bless,Namaste Raven1954.
sle since 1986, cerebritis,pre diabetic, peripheral neuropathy,mvp cataracts,degenerative disc dx. liver failure due to tylenol for to long,Meds: prednisone,inderal. synthroid,tegretol,nasonex,phenergan,dalmane,valium for fibromyl. dilaudid q8 for pain,cytoxin iv every 6 months,asa daily,albuteral inhaler,frequent antibiotics. Learning to live a differant life now, joining this has been a big step.Husband and son wonderful,but can't step inside,you guys are there.