Posted 9/27/2009 11:48 AM (GMT -6)
Welcome to the forum. When I was in highschool I started getting joint pain and had a very big sensitivity to fluorescent lighting. As I got into my 20's I had horrible periods and the joint pain and fatigue got bad. I was 26 when I got my diagnosis. My symptoms had grown into severe pleurisy and an inflammed heart valve that was causing palpitations and shortness of breath. Once I was admitted to the hospital, I was diagnosed 5 days later. I had a stroke 2 years after my diagnosis. This was caused by the antiphospholipid syndrome (APS). The stroke left me with a simple partial seizure disorder. My Lupus was fairly quiet until a month ago. It attacked my blood and has caused a fairly serious case of thrombocytopenia. I'm still dealing with it right now. I've been fortunate enough to never have any kidney involvement, which is rare! The disease seems to like to attack my blood.
Lupus is very unpredictable. it can be quiet for a long time and then all of a sudden cause a lot of problems. I take Prednisone, Imuran, Plaquenil, blood thinners and a bunch of other stuff. I"ve had good reactions from all these medications. Sometimes it take some playing around with various combinations of everything to find the combo that will work best for you.
I hope your Lupus is one that is well controlled. You can ask us anything here! We'll do our best to help you along.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content. Phillipians 4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, PTSD. Prednisone, Imuran, Plaqunil, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6,
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