haven't been here in a while

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 9/26/2009 6:40 PM (GMT -6)   
I haven't been on here in quite a while.  The last time I was I was going through testing and the rhumy said my tests didn't show lupus at this time.  So, since then I have pretty much given up on doctors.  I am almost positive that I have lupus.  I was looking at that last appt. as finally finding the answer and maybe getting some help.  I feel like I've also isolated myself from alot of people due to how I feel all the time.  I figured its time to try again.  I'm going to try a new doctor.  The biggest prblem with drs. is that they don't look at everything as a whole.  I need them to see the big picture.   Does anyone know of any dr like that in MI? 

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 9/26/2009 8:43 PM (GMT -6)   
I don't live in MI but I do know good doctors are hard to come by but they are out there. I suggest going to the lupus.org site and check their physician list or call your local chapter and see if you can get a referral.

I sure hope you find a good doc soon! Until then ask us any questions you may have. Take care
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/27/2009 8:33 AM (GMT -6)   
I don't know of a doctor in MI either, but Stacie had some good suggestions. IT is really hard to find a good doc who looks at everything as a whole and not just certain pieces like labs. Lupus is SO hard to diagnose and I read that it takes most people an average of 4 years and 3 doctors. It took me 3 years and 3 doctors. I was sick enough by the time I saw my 3rd doctor that he diagnosed me the day I saw him and has been helping me try to have the best quality of life I can have.

Don't give up. You know your body better than enyone else and you know if something is wrong. Is there a lupus support group in your area? If there is, you could go to a meeting and ask the members if they know of a really good doctor. Hang in there and keep trying until you find a really good doctor.
dx: UCTD (lupus), sjogrens, reynauds,
meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,
doxepin, folic acid   

Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 9/27/2009 4:59 PM (GMT -6)   
Thanks so much for the advice.  Most of the time I feel like I live with all of this alone.  I am married and have 3 kids but they don't understand.  You can say that you feel bad, that you are tired, that your in pain, but they don't get it.  Most of the time I get looks like I'm making it up.  This sickness has done a number on how I feel about myself.  When I do go to a dr.  I get so upset and anxious now that when I walk in I feel like a nervous wreck.  I am overweight and it seems that when I walk in that is where the dr. goes with it, or its depression.  I have cryed at drs but its because I want help, and I'm so frustrated.  I know i need to lose weight and excersise, but I'm so weak, tired and in pain its hard to do.  I have 3 girls I'm trying to raise and I feel like I fail them all the time.  Its hard.  Thanks again
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, July 18, 2018 6:58 PM (GMT -6)
There are a total of 2,982,943 posts in 327,063 threads.
View Active Threads

Who's Online
This forum has 161869 registered members. Please welcome our newest member, PSAfromEmily.
405 Guest(s), 11 Registered Member(s) are currently online.  Details
Kent M., vminas01, Sr Sailor, Lymess, Saipan Paradise, sierraDon, PSAfromEmily, hyderhari, Sober1, borborygmi, straydog