haven't been here in a while

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Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 9/26/2009 6:40 PM (GMT -6)   
I haven't been on here in quite a while.  The last time I was I was going through testing and the rhumy said my tests didn't show lupus at this time.  So, since then I have pretty much given up on doctors.  I am almost positive that I have lupus.  I was looking at that last appt. as finally finding the answer and maybe getting some help.  I feel like I've also isolated myself from alot of people due to how I feel all the time.  I figured its time to try again.  I'm going to try a new doctor.  The biggest prblem with drs. is that they don't look at everything as a whole.  I need them to see the big picture.   Does anyone know of any dr like that in MI? 

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 9/26/2009 8:43 PM (GMT -6)   
I don't live in MI but I do know good doctors are hard to come by but they are out there. I suggest going to the lupus.org site and check their physician list or call your local chapter and see if you can get a referral.

I sure hope you find a good doc soon! Until then ask us any questions you may have. Take care
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/27/2009 8:33 AM (GMT -6)   
I don't know of a doctor in MI either, but Stacie had some good suggestions. IT is really hard to find a good doc who looks at everything as a whole and not just certain pieces like labs. Lupus is SO hard to diagnose and I read that it takes most people an average of 4 years and 3 doctors. It took me 3 years and 3 doctors. I was sick enough by the time I saw my 3rd doctor that he diagnosed me the day I saw him and has been helping me try to have the best quality of life I can have.

Don't give up. You know your body better than enyone else and you know if something is wrong. Is there a lupus support group in your area? If there is, you could go to a meeting and ask the members if they know of a really good doctor. Hang in there and keep trying until you find a really good doctor.
dx: UCTD (lupus), sjogrens, reynauds,
meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,
doxepin, folic acid   

Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 9/27/2009 4:59 PM (GMT -6)   
Thanks so much for the advice.  Most of the time I feel like I live with all of this alone.  I am married and have 3 kids but they don't understand.  You can say that you feel bad, that you are tired, that your in pain, but they don't get it.  Most of the time I get looks like I'm making it up.  This sickness has done a number on how I feel about myself.  When I do go to a dr.  I get so upset and anxious now that when I walk in I feel like a nervous wreck.  I am overweight and it seems that when I walk in that is where the dr. goes with it, or its depression.  I have cryed at drs but its because I want help, and I'm so frustrated.  I know i need to lose weight and excersise, but I'm so weak, tired and in pain its hard to do.  I have 3 girls I'm trying to raise and I feel like I fail them all the time.  Its hard.  Thanks again
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