Hi! Tammy and everyone,
I am finally being forced by illness to look into permanent disability, I am 54 and have been a nurse for 34 years. Life is all about balance, and lupus really skews that. Maybe it would help if you wrote a list, and put life in priority order, identify goals and ask your close family what they think, and maybe you could craft a compromise. Know that the decisions you make rt. now, will impact conception chances, and healthy pregnancy chances, and your level of wellness 30 years down your road. Could you not work for now? Or decrease your workdays to 3, i.e. everyother? That worked for me for many years. We have to listen what our body is telling us, and adequate rest is vital. I vote talk to your dr., husband and then boss. It is great that your dr. knows you want to have a child well before you start. So you can be in remission, as healthy as possible, and on meds that won't hurt your baby. And it wouldn't hurt to ask your dr. to refer you to an infertility endocrinologist or rheumatologist, someone who has experience taking care of pts. with autoimmune disease. Had my APA been identified sooner, and treatment started even before I conceived, I would have had better chances with the babes I lost.
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.