I hope this fines you well. Please forgive me for not coming here more often. It's just that I am so sick that by the time I get done posting a message I am usually to sick to get back to the computer for days. and that's not fair to you with all the support you have given me. The reason that this group works so well is that there is so much love and support give and take. I just don't have anything to give.
The weather has barly turned and my lungs have me in bed 85% of the time. I pray alot that I just go home. I saw house last night and they said they had a person in the morgue with scleraderma. I thought that lucky person!
Good news is I am getting my own place that goes by income. they are nice apartments and my dog is signing a paper saying my dog is my support so i can keep him. They are all down stairs apartments close to the door to get the grocceries in. and they pay for cable so every little bit helps.
the people that live there are older or disabled so it's not a lot of loud noise.
I spoke to Barb yesterday. She just found out her father has cancer. She lost her mom years ago. Please keep her in your prayers.
I understand them taking me off the steroids for the transplant but if they don't know when I wish they would give them back. I am certain that has a lot to do with my going down hill. I've been off them for months and havn't had many good days since then. My pulmonologist said that I didn't need steroids that it was a figment of my imagination. I wish he had one of my days.
well I need to go I just wanted to send a hello and please know I am never farther away then a call or email.
Bunch of medicine and I'm sick a lot!