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Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 10/6/2009 5:46 PM (GMT -6)   
Hi,  its me again talking about my pain.  I've noticed that most of my pain is from the tendons and not the joint.  I've been heating mostly and trying hard to rest, which is pretty hard because like most of you I have dreams of being active.  I've had pain in my hands, feet, knees and elbows lately and I'm just wondering what other people do when they get like this to relieve some of the stiffness and burning that happens.  I hurt so bad that I wish I had an electric wheelchair sometimes and a crane to help me off furniture.  I'm not overweight or anything and I'm not lazy-it just hurts.  I know that I don't have to explain the pain to everyone on here. 
Also, I'd like to mention that last week  I tried Aspercreme with Heat.  BAD IDEA!!  At first when I applied it the feel was soothing allowing a few hours of sleep before I woke up with what felt like open flame to my skin!  It was horrible.  My husband couldn't believe this was happening.  We tried to wash with soap and water to get it off and you could see that my skin was red hot where I applied the ointment.  I eventually had to place ice packs on my body where I had used the stuff to stop the burning so I could get some sleep. 
Another thing I've noticed lately is that in the morning I'm awful stiff which is usually somewhat relieved by the time I get out of the shower.  I'm good for a pretty good portion of the workday then.  Its been getting earlier and earlier in the afternoon that what I had been getting.  I used to get stiff in the early evening.  And, I've upped my Prednisone to 15 mg from 10 to try and get through this. 
Any advice you have to offer is greatly appreciated. 
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 10/7/2009 5:33 PM (GMT -6)   
Hi Tammy! It sounds like you are flaring pretty bad right now! Have you called your rhuemy? They might need to adjust your meds to get through this flair.
about the pain, to be honest, when I was having horrible pain I could not find anything that would help. I would hurt so bad I couldnt even go to the bathroom by myself because I couldnt sit down or stand up from the pain! Nothing helped except pulse IV of prednisone at 1000mg for 3 days...then they put me on 60 mg orally, which I am back up to...Stupid Kidneys (LOL) but it has helped greatly with the pain....its not all gone this time but its helping a lot. I had several different pain killers and they did nothing. The thing that might have helped a little bit was keeping your body warm. I would take my heating blanket with me everywhere and keep it on me at all times. Also a HOT bath would help but make sure your husband is around because I am guessing you wouldnt be able to get out of the tub by least I wasnt due to my pain.
I hope you feel better and the pain gets better. Do you know if your Kidneys are flaring up to? I would deffainly call your rheumy because they might want to check that since you are flaring! Please keep me updated and sorry I didnt have any good advice!!!!



Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...


Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 10/7/2009 6:55 PM (GMT -6)   
Hey, Thanks for responding. I called my rheumy a few weeks ago and he just put me on 10 mg of pred, and said I could up it to 15 if needed. Today has been better than yesterday but have a hard time squatting down or getting off a chair. Its such a nasty feeling. It feels like my knees are so tight and they hurt terrible.

I do want to say that on my Christmas list there will be a heated blanket. Right now I only have a heating pad which doesn't cover nearly as much of my body surface as I would like. I've been in my hottub quite a bit lately and that it soothing, but as soon as I'm done the pain is back. RRRRRR!

I never even thought of my kidneys flaring. I'm going to see a different rheumy next week who speaks better english than the dr. I currently go to. I have a long list of questions that I'm hoping he can answer for me, but I have no intentions of switching drs. I just thought a second opinion on some of the issues that I'm going through with pain might not be a bad idea and he might even have some solutions for me. I'll keep you posted.
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 10/7/2009 7:02 PM (GMT -6)   
I know it's hard to handle at first but ice really can numb the pain and sometimes works lots better than pain meds.
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 10/8/2009 11:30 PM (GMT -6)   
I had problems and it was from Levaquin (Tequin) an antibiotic. You might want to review any meds like that you have taken recently. I'm stuck with the tendonitis now, but at least they didn't rupture. Voltaren gel (a muscle relaxer gel) has been helpful as is bengay, heat or ice depending on how I feel. Also, lidocaine patches can help, yuo can cut them to fit. I only wear them at night because they roll up under my clothes. The volteran gel is really a nice new thing and it also loosens my always tight arm muscles. My rheumie prescribed it. Physical therapy can really help if they do proper stretching exercises and other therapies.

Mine is "roaming" and comes and goes out of the blue,but seems to occur every other month or so, switching shoulders ach time. Mine was confirmed by EMG, deep muscle/tendon/nerve stimulation---it was extremely painful and long.

Hope you feel better. Tiger balm can help if you like that kind of thing. The voltaren helps me most. I'm allergic to the pills, but can use the gel. My liver just doesn't like the pills.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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