Posted 10/8/2009 5:21 AM (GMT -7)
Thank you all for your support.My dose changes every 6 months with whatever my weight is.It only took 3 hours to get in,my veins were behaving.Nausea was bad,but they were right on top of that,plud one hour before I get a pre-med of Zolfran,and decadron ivp. Really helps,plus zolfran iv as needed during infusion,and after.Was home by 6pm.The first 6 months with monthly tx. was really hard,and yes I lost most of my hair,my husband called it my Billy-Bob Thorton look. Now on the every 6 month schedule,forever.Lose very little hair with that,but made mistake of coloring my grey once,and lost most of it again.I have a couple wigs,great chemo scarves,I use when start feeling better and going out a little.It is very empowering to feel you look you best when going out.If don't feel uo to it I just go the way I am,and if someone stares,Oh well,their problem. Hope all goes well for you.p.s.Stay in for 2 weeks after iv tx. because of no immune system,if have to go out during this period, I wear a mask.and am ocd about hand washing. God Bless, Namaste Raven1954
sle since 1986, cerebritis,pre diabetic, peripheral neuropathy,mvp cataracts,degenerative disc dx. liver failure due to tylenol for to long,Meds: prednisone,inderal. synthroid,tegretol,nasonex,phenergan,dalmane,valium for fibromyl. dilaudid q8 for pain,cytoxin iv every 6 months,asa daily,albuteral inhaler,frequent antibiotics. Learning to live a differant life now, cpap for sleep apnea.Life is not a journey to the grave with the intention of arriving safely,in a pretty and well preserved body,but rather to skid in broadside,thoroughly used up,totally worn out and loudly proclaiming-WOW,what a ride!!!