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Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 10/7/2009 10:50 AM (GMT -6)   
Hey folks,

I'm doing some physical therapy in hopes that with using some muscles I might be in less pain -- and maybe my metabolism will start up again! However it leaves me QUITE exhausted and I'm just not able to keep up with the forum right now.

Most of you know the forum rules, plus here is a shortcut to them, they are also at the top of the page. Included is a list of things we SHOULD do!

Please feel free to email me or one of the other moderators if something seems out-of-wack, other wise you are all "on your honor" to play nicely! :-)

Here's where to get the email addresses of the Lupus Moderators if you need help: AlwaysRosie, Lynnwood, Ginny

Thanks for your patience,
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

Post Edited (Lynnwood) : 10/7/2009 10:02:51 AM (GMT-6)

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 10/7/2009 3:18 PM (GMT -6)   
I hope you feel better soon.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 10/7/2009 4:57 PM (GMT -6)   

Please feel better, soon. Sending good thoughts your way!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 10/7/2009 5:13 PM (GMT -6)   
Hey Lynnwood! I sure hope that the physical therapy helps relieve some/all of your pain!
Also thank you for all the wonderful volunteer work you do around here! I know it takes a lot of time and patience and for that i am very thankful!



Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...


Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 10/7/2009 7:21 PM (GMT -6)   
Hey Lynnwood, we will try to behave ;)

I hope the therapy works well for you, you take the time you need for yourself! We all understand what you're going through, hang in there! Take care of yourself!!
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 10/7/2009 10:53 PM (GMT -6)   
Lynnwood, I hope the physical therapy helps with your pain. Consider yourself taking a moderator's break to try out something that might help all of us. Good luck with it. Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

Regular Member

Date Joined Sep 2009
Total Posts : 31
   Posted 10/8/2009 6:28 AM (GMT -6)   
I went to rehab for a month after my stroke,then a month of home p.t..Supposed to do exercises daily.But alot of times just to exhausted.I try to do just at least range of motion daily.We all do what we can,listen to your body,it will tell you what you can handle,sometimes it's just laying in bed and pampering youself,in the long rung you will benefit greatly from that too. Feel better. God Bless, Namaste Raven1954
sle since 1986, cerebritis,pre diabetic, peripheral neuropathy,mvp cataracts,degenerative disc dx. liver failure due to tylenol for to long,Meds: prednisone,inderal. synthroid,tegretol,nasonex,phenergan,dalmane,valium for fibromyl. dilaudid q8 for pain,cytoxin iv every 6 months,asa daily,albuteral inhaler,frequent antibiotics. Learning to live a differant life now, cpap for sleep apnea.Life is not a journey to the grave with the intention of arriving safely,in a pretty and well preserved body,but rather to skid in broadside,thoroughly used up,totally worn out and loudly proclaiming-WOW,what a ride!!!

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 11/16/2009 7:25 PM (GMT -6)   
Hey Lynnwood! I was just wandering how physical therapy is going? Do you see an improvement?

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 11/16/2009 7:47 PM (GMT -6)   
Hi Lynn,

I hope you are getting some relief with the physical therapy. Take care of yourself. You will be in my thoughts and prayers.


Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 11/16/2009 8:07 PM (GMT -6)   
This is a strange deal -- my hip is much stronger than it was when I started PT, at the beginging there was not a chance I could stand on that foot & balance. The muscles are stronger now, but I still have a stabbing pain at unpredictable also moves around.

I do think the PT is helping me overall to get moving rather than being afraid of pain, and is also a good way to get out of the house and see the world!

The latest is that an Xray doesn't show anything & the rheumy has put me on prescription Vit D. I have regained some energy, but am still tired (aren't we always) and still have to do some pain meds from time to time for my hip.

Thanks for asking,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 11/16/2009 11:27 PM (GMT -6)   
Hi Lynn,

Sending lots of positive thoughts your way! Hope it continues to work well for you and get the relief you so deserve!

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 11/17/2009 11:25 AM (GMT -6)   
Thinking of you, Lynn.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 11/20/2009 7:26 PM (GMT -6)   
Lynwood I hope you start feeling better soon!
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 11/20/2009 11:12 PM (GMT -6)   
Had similar problems and eventually physical therapy, though helping my back alot, made the hip worse. It ended up being pinched nerves at the nerve root. I had two injections in the nerve root and other than the fact that the pain meds didn't go through the iv right, the actual injections lasted 4 months. I still do not have the constant pain back that I had before, but am returning in Dec for the same two injections. I felt like a new person. And even though they say all the solumedrol goes in the nerve, I got a good steroid treatment out of the deal, helped the AI as well for about a month.

It might be something to consider if you have a place you trust, make SURE they knock you all the way out when they do it!
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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