Hi, I am sorry you are still in dx limbo. I have been there and it is frustrating. Lots of
bloodwork, same results and still no answers. My first diagnosis was UCTD but after a
year and a half, my rheumy diagnosed me with MCTD. Once I recieved the new dx, I really
didn't feel differantly physically. Emotionally it made it real for me.
MCTD is the ony connective tissue disease that can be confirmed with only one antibody,
RNP. I did have a skin biopsy to confirm scleroderma, and I get rashes on my chest and
You are lucky to have a great doctor, I do too. There are so many others looking to find
one. My rhuemy put me on Methotrexate. In the past I have done a prednisone taper,
was on Imuran and Plaquenil.
I try to eliminate as much stress as I can, because stress always results with more pain.
Soaking in a hot bath relaxes my muscles and feels good. I do gentle stretching and
I walk daily to help with the energy.
Like you, I also have fibromyalgia and deal with insomnia. When I am flaring I take
Flexeril. I also take 50mg of Savella 2x daily. It has helped some with the all over
Dealing with illness is a challenge to say the least, but I try to take it one day at a time,
otherwise it is too overwhelming.
I am hoping you find the relief that you need and that you will get your dx soon!
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative
Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins