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Monalisa <3
New Member

Date Joined Oct 2009
Total Posts : 11
   Posted 10/11/2009 7:08 PM (GMT -6)   
so i noticed a few ppl who have lupus also have reynauds. my hands/fingers and feet turn white or blue and go numb alot. is that part of reynauds? i've asked by rheumy before and she said no because there were other this true?

Veteran Member

Date Joined Apr 2006
Total Posts : 1342
   Posted 10/11/2009 10:23 PM (GMT -6)   
It sure sounds like raynauds.  Do your fingers and hands go white/blue in response to cold?
I have raynauds which is a common secondary condition with diseases like lupus, scleroderma and polymyositis.  Since I have all three I was destined to have raynauds.
There are other causes but possibly you should seek a second opinion.  Unless the condition is severe it is usually not treated.  Since I am a winter person and spend all the time I can skiing, hiking, snowshoeing it is a problem but I have learned to dress and cope with it down to -10F.  Otherwise, it is more annoyance than anything else.
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 10/12/2009 9:02 AM (GMT -6)   
I agree that it sounds like raynauds. Bill gave you some great information and I really don't have anything to add. I don't need any additional treatment for my raynuads - I just make sure to keep my hands and feet warm.
dx: UCTD (lupus), sjogrens, reynauds,
meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,
doxepin, folic acid   

Monalisa <3
New Member

Date Joined Oct 2009
Total Posts : 11
   Posted 10/12/2009 10:41 PM (GMT -6)   
yea it def happens with cold. i do my best to keep warm, its not hard living in the desert :)...i'll mention it to my doc again. thanks!

Regular Member

Date Joined Oct 2003
Total Posts : 495
   Posted 10/15/2009 6:43 AM (GMT -6)   
Yes, I have it and have to deal with it every winter. In the summer a/c, cold air will set me off. The Food Lion store is the worse for bing way to cold.
Enjoy what you can today and leave the rest for another day.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 10/15/2009 9:16 AM (GMT -6)   
It sounds like Raynauds to me. My rheumy has prescribed a calcium channel
blocker to help. I take Diltiazem 180mg daily for raynauds and hypertension.
Cold or even anxiety will turn my hands and feet white, blue and red.


MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Post Edited (crazykitty) : 10/15/2009 11:31:53 AM (GMT-6)

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