Thanks Carol, its so good to hear from you. Its so hard because you know the steroids will give us some energy, brain power and some kind of life, but then we just keep getting sicker.
I need the broom! I feel like a crumpled up ole lady, withthe attitude to match. I hurt so bad in my neck. And flying beats walking. If only the broom worked like that, or like the one in Fantasia.
I got the news today that I will need a liver transplant down the road but I explained to the doc that I doubt I will be a candidate due to the multiple different problems I have. IT looks like he might help me push for a jejunal bypass, another way to fix my liver problem and hopefully slow, if not stop, progression. Finally, somebody who cares and knows his stuff and isn't afraid to get his hands dirty. I'm really happy. I don't know if I will qualify for that, but I still tolerate surgery well. And he will do some banding to stop my gi bleeds. So good things!
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids