I'm trying to stick it out as long as I can before I get more steroids. I'm a little worried about my heart. I went out today and was in my shed and did some sweeping and got really hot and sweaty fast and couldn't catchmy breath. I went in and laid down and it felt like my heart just couldn't catch up. I feel so out of shape but on steroids I'm not like this at all. I don't knowif that is normal, to be so much better on steroids, or whether it is a sign I need to get back on them.
I'm trying to see what I'm like without them and to stretch out things. The spinal injections I got were expensive and painful and traumatic but I'm having problems off and on again.
The docs like me to try to not be on steroids all the time and I'm trying to make things last and givemy body time to recover. I don't know if they will want me to do more injections or whether I can do pills. I have a biopsy of my lymph nodes and some gi stuff coming up, so I have to try to work the rheumie in around that and decide about another spine injection. Any help would be appreciated. I'm a little scared about the heart thing sinceI've had damage before.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids