Posted 10/16/2009 4:08 AM (GMT -7)
Lupus vasulitis or cerebritis as the rheumies like to call it(all the same thing),Seem to have different manifestations for everyone,like all things lupus,the great shape changer. Had never had any cns symptoms for 25 years,then started having severe sinus headaches,which never had before either,then out of blue had a stroke while watching t.v. After all tests,found the cerebritis,plus huge mass,encompassing whole side of left lower face,in every sinus cavity there was.2 surgeries for that,plus i.v. cytoxin for cerebritis.Headaches and nausea,loss of balance,focal seizures all come with the cerebritis for me. I take oral phenergan 3 times a day to deal with the nausea,really helps,headaches unreal,time my phenergan with pain meds.hope this helps. God Bless, Namaste Raven1954
sle since 1986, cerebritis,pre diabetic, peripheral neuropathy,mvp cataracts,degenerative disc dx. liver failure due to tylenol for to long,Meds: prednisone,inderal. synthroid,tegretol,nasonex,phenergan,dalmane,valium for fibromyl. dilaudid q8 for pain,cytoxin iv every 6 months,asa daily,albuteral inhaler,frequent antibiotics. Learning to live a differant life now, cpap for sleep apnea.Life is not a journey to the grave with the intention of arriving safely,in a pretty and well preserved body,but rather to skid in broadside,thoroughly used up,totally worn out and loudly proclaiming-WOW,what a ride!!!