Patty, Im going to ask my rheumatologist at swedish in seattle for a good ped rheumy. My whole thoughts exactly on early intervention no mater what type of autoimmune problem there is. I just dont what to see her go through her organs being affected one after the other like me. You know there is alot of my cousins with lupus. I think there is now 5 of us. These cousins are all related through my mother and her siblinings. There is also other autoimmune problems with her side coming through my grandma.
connie, one thing I always tell my children which they can recite now is:
"Sometimes you have to do things you dont necessarly want to do but you have to do them anyways." You know the odd thing is that when she is hurting you know its really bad because in general she wont complain otherwise. She's deffinantly a fighter. Born at only 4 1/2 lbs and 4 weeks early with a cord around her neck twice and small for gestational age, with a mother in pre eclampsia, I knew she was a fighter from the begining.
Thank you everyone else for the prayers and thoughts. It sure helps!
Lupus (SLE), fibromyalgia, T4/T5 & L fractures, hyperthyroid, pernisious anemia, Interstitial lung disease, vasculitis, neuritis, osteoporosis, gerd, APS, thyroiditis, complex thyroid nodules, asthma, 4 valve regurg., hemolytic anemia,