Hey girl! I am sooo sorry you are at this point. I know it is scarey and it took a while for reality to hit me too! It actually took me about 8 years to progress to end stage renal failure and to go on dialysis. I did massive amounts of steroids the first year, then progressed to cellcept and a lower dose steroids then cytoxan and steroids. I have never done any other major treatment course. I'm really not aware of anything else out there. Of course, that doesn't mean it doesn't exist. I'm praying that your rheumy and nephrologist can put their heads together and come up with something.
Remember Amy, don't lose hope. This thing could turn around. I was on dialysis and not being aggressively treated for my kidneys when they suddenly began to improve. I am praying for you and I know others are. I still have to take Procrit shots to help build red blood cells. The hormone that stimulates your bone marrow to produce red blood cells is manufactured in the kidneys and that's why when you kidneys are failing you have difficulty with anemia. (plus meds contribute) Do be very careful about potassium! It can be very dangerous.
Please keep me posted on your situation! I hate Lupus and what it does to wonderful people like you! Keep your chin up girl! Love ya, Judy