I really feel for you....it's terrible to be in constant pain with no medications helping. You are definitely too young to be feeling that bad!! I'm so glad you've found this group....we do understand what you're going through and we will listen!
I don't know much about
Pristiq, although I guess if it's the only thing that you're doing differently it could be at least part of the problem.
As to the gluten free diet, you may want to look into and decide for yourself. The latest research indicates that untreated celiac disease can lead to the development of other autoimmune diseases (www.umm.edu/news/releases/zonulin.htm
). I'm convinced that it did in my case. But that's probably not the only way that AI diseases can occur.
Do you have any indication that you might have celiac disease (chronic diarrhea or constipation, abdominal pain and bloating, gas, unexplained weight loss or
weight gain)? Have you ever been on a very low carb diet and noticed that you felt better? If so, perhaps you should ask your doctor to test you for celiac disease. If your tests are negative, you may still be gluten intolerant. The only test for gluten intolerance is to try the gluten free diet and see if you feel better. But if you want to be tested for celiac disease, don't go gluten free until after all testing is done.
I've read postings from a number of people with lupus, RA, fibromyalgia, and all sorts of other AI diseases and associated conditions, who swear that the gluten free diet saved their lives and restored their health, and that all of their illnesses have gone into remission. I have been on it for less than a year, and have seen improvement in certain areas but not in others (not yet anyway). I've been told it can take two years or more to feel better when there's a lot of damage.
My family has SO many AI diseases; most of my (adult) kids are now gluten free because they are trying to keep their own AI diseases from getting worse and they have put their own kids on the gluten free diet to try to prevent
any autoimmune disease from developing in them!
A good place to ask questions about
celiac and lupus connections is www.celiac.com/gluten-free/
, which is a bulletin board site about
celiac disease and the gluten free diet. They have multiple forums just like HealingWell does, but they're all about
different aspects of celiac and the gf diet. The best place for newbies to start is usually "pre-diagnosis, testing and symptoms", although you might want to look at "related disorders & research" too. There's also a search feature so you can type in "lupus" and see how many threads show up. The celiac forum here on HW is not very active.
I am newly dx with SLE and I've been having a bad flare myself. I haven't been able to go to work for more than a week, so I do know what you're going through! Plus we have two adopted children ages 3 and 4....it is hard to be sick when you have little ones!
I don't know if I helped you at all but I'll definitely keep you in my prayers!
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.
Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAPautoimmunediseasesgfliving.blogspot.com