Point of Contact pain?

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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/31/2009 3:17 PM (GMT -6)   
I'm not sure what else to call it. My edema is vary bad right now. Excuse the vidid image but some of us women have the xtra flab between their legs that rub around somtimes. While my doesn't normally do that it certainly wouldn't take much even on a good day.
Anyway, both inner thighs are very sore and red but feel more bruises then chaffed. Plus I have my 02 on and just having the hose touching my ear wrapped around my head has made my left ear so sensative. I tried to put cotton over the hose but it isn't helping. My hands feel so hot in the palms. there is pain in my feet from walking on them with all the swelling going on.
Does anyone have any tricks for releiving some of the pressure off these areas? They aren't open sores but yet I wouldn't want to use ben gay on them either.
thanks in advance

systemic sclerosis sine scleroderma,sleep apnea,Megaloblastic anemia
what ever that is.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 11/1/2009 11:42 AM (GMT -6)   
Carol, I don't know what to suggest except for pain meds. Don't you have vicodin? Is your sil still trying to control your meds or do you now have them? I'm so sick of this pain & know you are too.

When are you getting your wheelchair? Is your new place wheelchair accessible?

Hang in their girl.

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 11/1/2009 12:13 PM (GMT -6)   
Maybe search for "contact sores"? Somehow I think that's what they are usually called.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 11/1/2009 1:54 PM (GMT -6)   

Hi ladies, thanks!

Yes Pat I have pretty much had it with everything. I have an appt first thing tom. with my PCP. She asked me If I wanted a motorized wheelchair or a scooter. Physical therapy was suppose to start this week but the company that  works for me refuse to come out this far., I'm trying to do a few things by myself but I just look like I got a couple of clubs on the end of my legs. I swear I feel like I am being attacked. Then this rash everywhere that looks like I have shingles. cry . As for the pain meds I have them myself. My doctor gives me 120 month. She increased them to 10mg. Plus I have the fentynal patches but I am to scared to use them. I will say though if I need them I will use them. You can count on that!


The apartment is put together where I think It will help me if I realy need it to. I'm very greatful for all the help I have been given. I don't know . I already heard the smart remarks about I'll get lazy and not doing anything.

I really can't wait to get moved. I have a couple things I will need like a washer and dryer. I'll let ya know when I get moved and you can come spend the night. Sorry for all the typo's my mind keeps floating away. I'm doing the phyco bable steroid dance right now. I don't even remember what sleeping is like anymore. I was on 125 mil. salumedrol in hospital. then down to 60 and then to 40. So hopefully I catch up on much needed sleep soon.

thanks again ladies.

systemic sclerosis sine scleroderma,sleep apnea,Megaloblastic anemia
what ever that is.

Veteran Member

Date Joined Jun 2008
Total Posts : 675
   Posted 11/1/2009 7:24 PM (GMT -6)   
So sorry you are dealing with this.  Hope you get your scooter soon.  I'm glad you are going to the doc tomorrow - is it possible you are having a latex reaction (allergy) to the O2 tube?  My SIL had that happen to her......
Praying you get some real relief - hang in there...
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 11/2/2009 6:40 AM (GMT -6)   

Hi! Carol,

Hope you are better, soon. If you are using an nasal cannula, could you try wearing it over your head instead of looped around your ears? So it sorta snugs up at the back of your neck when you are laying down.  Maybe try a barrett in your hair  or some paper tape could anchor it over your cheek bones if you could stand that for awhile. And I found that some very soft but snug leggings keep my thighs from rubbing, and my cellulite from jiggling so much. Maybe you could try an ace bandage, too. There is a good kind that sticks on itself. Just be sure you don't wrap it too tightly, and start the spiral going once around itself even to anchor the start end, then in upwards spiral so that the wrap is equally spaced at about a 45 degree angle, and with gentle pressure as you wrap UP your leg. I use a wedge pillow under my mattress to raise my feet up abit at night. Latex sensitivity is a good thought, maybe you could ask your family dr. for a few inches of narrow stockinette gauze, it's a lightweight cotton gauze tube, that could be taped loosely around the cannula tube where it rubs over your ears. God bless with your move, hugs,


ps. scooter speed limit is 55, so NO speeding tickets! tongue

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

New Member

Date Joined Oct 2009
Total Posts : 5
   Posted 11/3/2009 9:15 PM (GMT -6)   
We used to use 4 x 4 dressing sponges taped around the o2 cannula. Most things are latex free now, I would think your o2 tubing should be latex free also.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 11/3/2009 10:19 PM (GMT -6)   

 thanks for the info. Yes you are right because I found out about 10 years ago that I am allergic to latex. I have a few nasty scares from when they removed my tape and i.v.'s back then. The oddest thing is just under my breast the rash just has no give what so ever. Now it is moving towards the right side as well.

Suetoo, I'm gonna see if I can find a place on the net that shows a pic of the tape around my (celulite). I've been using cannula's since  04 so I'm not real sure what the problem is there.

The peppercillian is a new drug for me so maybe that is part of the problem? Possibly too much antibiotic. I got a blood test done this afternoon maybe that will give me some ideas. Plus I had a nasty case of thrush that isn't quite healed yet.

well thanks for all the response. i'M TIRED!!!!!!!!!!! smurf , smurf

systemic sclerosis sine scleroderma,sleep apnea,Megaloblastic anemia
what ever that is.

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