ILD is not a disease but a general catchall for different lung ailments. It is common with myositis diseases as well as lupus and it was thought I had the problem 4 years ago. PFT tests and ultimately a right heart catherization showed my lungs were OK but my weakened diaphragm muscles were imitating pulmonary hypertension.
Shortness of breath can have many other causes. Hopefully your tests will reveal what is causing the distress.
MCTD (lupus, scleroderma, polymyositis). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005. Recovered and now active in skiing, tai, chi, hiking, golf. Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.