Posted 11/3/2009 7:09 AM (GMT -8)
I have just a few questions. Here is a little background information. I went to the rheumy last week after having unexplained hives and facial swelling since August, numbness in my feet and hands, a + rheumatoid factor and an ANA titer of 1:320 with a speckled pattern. I do not have any joint pain, swelling or weakness. All of the other labs were normal (cbc, thyroid, liver, kidney function, etc.) He doesn't think I have lupus or rheumatoid arthritis. He noticed some areas on my arms (which I thought were freckles-not new, not in any relation to the hives) that he thought might be cutaneous mastocytosis or urticaria pigmentosa. I guess it is where there is an abundance of mast cells in your skin or systemically that can produce massive amounts of histamines to a variety of triggers. So I have an appointment with the derm. for a skin biopsy. He also ordered a whole bunch of labs which are more specific than what I already have had. The results are not all back, but I think my rheumatoid factor is negative now. My hives have been a lot better than what they were with the first set of labs, I am on all kinds of antihistamines to keep the hives at bay. What are these mouth sores like that some people get? I woke up with a couple of irritated spots on the roof of my mouth, they don't really hurt, it just feels like I burned myself with hot food, but I didn't. And what are some of the symptoms some of you presented with. When I went to the hospital for the labs, I spoke to someone who has lupus, was very familiar with the labs I was having performed and said my scenario is very similar to how she started. She also said it took her 3-4 years to get diagnosed and has battled with hives for almost 25 yrs. Any thoughts would be appreciated. I am to see the rhuemy again after I get my biopsy completed.