My mother and I are going through the same thing. She has a tentative diagnosis of ulcerative colitis with some kind of autoimmune disease with it involving sores in the mouth and gi tract and hives occasioally too, like shingles almost. They are considering a diagnosis of Behcet's. There is another disease you might want to read about
called Reiters syndrome (I may have spelled it wrong) that also involves sores too and occurs after certain infections. In our case, its not so mucha question of whether or not we have ai disease, we just don't fit in the common types.
Sores are typical with AI disease so I don't see why they view this as strange, except that we are much sicker than they expect us to be I guess and the sores are very stubborn and hard to get rid of. But they are for many people with AI disease, especially once they take hold.
Nothing surprises me anymore, things break that I didn't think could break. I hope it is something they can clear up. My mom takes Acyclovir (for herpes/shingles), miracle mouthwash, and there is a dental steroid cream they can give yo to apply to the mouth sores to help them clear up faster. She also gets entocort and antibiotics lke flagyl sometimes.
I feel for you, the sores are miserable.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids