Thanks to all of you in your quick response to my question. It means a lot to me. I have no one else around that can so closely relate to what I'm going through. I appreciate the life advice from those of you who have been on it. Thanks for the tips in taking it before bed, and also making me aware with what to expect, or what "should" happen in regards to regular testing. I guess it does make sense in several ways to stay on the Plaquenil. You know how when you go into a specialists office your brain can turn to "mush" and things get hard to retain? I'm improving when it comes to being prepared for appointments, but I didn't quite catch if I am going to be told to go completely off the Plaquenil once I start Imuran. I guess those will be future questions for me to ask.
As far as testing for what's happening to my legs...that should be happening in the near future. I have not been impressed with the Rheumatologist that I've been seeing for the last 2 years, and that is why I have sought out the second opinion. I have been having trouble with my quads for over a year now, and have been nothing with frustrated with the lack of help received from my Rheumy. He's shown little to no interest. I came to an appointment one day, barely walking and using the walls to help me into his office...all I received was a quick 5 min appointment, was told I was having myalgia, and "see you again in three months." Since then, it's been not that much better...I am so thankful that this new doctor is going to help me get to the bottom of what's going on. I was once (and hope to be again) a very active person. I loved to train to run, and 3 years ago ran a 1/2 marathon. Now I'm suffering hugely if I go for a 10min walk:( I don't fully understand all the tests that he's going to have done on me..I'm a little confused right now. He wants me to see a neurologist specifically for what's happening in my quad muscles, and also work. There was some specific test (don't remember what for) that he said needed approval of funding to send me to the states at the Mayo Clinic to get done.....any idea what that could be?
A few people have asked me what my diagnosis is...well I have noticed other peoples signatures on the bottom of their posts, and I will try to type out what I have the best I can. Thanks again everyone, and I look forward to more communication in the future.
**It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops**
Dx: Diagnosed with Epilepsy Jan 2005 and put on Tegretol, Diagnosed with SLE July 2007, and take Plaquenil