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New Member

Date Joined Aug 2008
Total Posts : 8
   Posted 11/13/2009 9:21 PM (GMT -6)   
Hi everybody,
   Its been a very long time since I've posted on this site. I've been very busy, finished nursing school, passed my boards and now looking for a job. I first started posting around July/ August of 2008 when I was diagnosed with Mixed Connective Tissue Disease, anemia and leukopenia. At the time I was experiencing extreme fatigue, muscle fluttering/twiching and tingling in all my extremities. All of these sympotoms still persist but I was able to manage them or should I say I acted like I was fine so everyone around me thought I was okay.
  Unforunately this last week has brought new problems. I am having intense pain throughout my chest that at times is sharp and aching, as wel as shortness of breath. It gets worse with activity. My chest xray was fine and my heart is ok, so I'm thinking its inflammation. I also did a left hip xray  because of intense pain and it showed that I have arthritis on that side. My initial thought was I'm only 26 how can I have arthritis, but my mother-in-law who is also an RN reminded me that some babies have arthritis. Anyway my rheumatologist wants to start me on Plaquenil but I am really nervous to be on medication. On the other hand I know I need to start something because my condition is getting worse. I'm scared, but I know that I have to take care of myself and get a handle on this thing now.
Thanks for reading

All things work together for good for those who love God and are called according to his purpose.
Romans 8:28

Regular Member

Date Joined Oct 2008
Total Posts : 119
   Posted 11/14/2009 1:35 AM (GMT -6)   
First of all, congratulations on finishing and persevering through school. WAY TO GO ! I realize we don't know each other from a hole in the wall, but I am 28yrs old now, and was 26 when I was diagnosed...that year I was told about the Plaquenil and it was suggested to me not that long ago..I too was I am facing a new for further help. I was hugely nervous about the eye damage that Plaquenil could possibly due, even though I was told that it's a very slim to none chance..the thought still frightened me. I'd also had a bad experience with getting used to another strong a few years back. So, I was told from the doctor that I had the perscription when I was ready to fill it. I could see if I felt the symptoms were ok enough to was up to me. It wasn't too too long afterwards until for me, it became too much...I wanted to see what life on the meds would be like. I haven't been sorry. I don't remember ever feeling much of a negative side effect at all from the ..only good came of it for me. What it did for me was take away the nagging arthritic pain that I'd been becoming "used to" (how does one ever really get used to it?). It stopped me from constantly getting sick..cleared up the skin rash and puffiness I had on my fingers, and numerable other things. It can make your life feel a lot more bearable and hopefully do you a lot of good. I realize other people's stories are different, but mine with that is a positive one. I hope that in some way I've managed to make it a little less scary for you. In some ways I feel like I can relate with the disease still being fairly new to me as well. Take care okay? And I agree, all things will work together for good for those who love the Lord. He does take care of us in every trial and tribulation..and he knows and cares about every aspect of our lives. He carries all our burdens. Especially the painful ones if we let him. He's been doing that a lot for me lately let me tell you:)

Wishing you all the best with it,

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.

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