I talked to my pulmonologist while I was in the hospital about tests for blood disorders, and he told me that we would have to wait until I'm off the coumadin to test, since the coumadin would alter the tests. Are we talking about different tests? Maybe I'm thinking about other tests than you. I'll have to google the syndromes you listed and learn more.
Is my crohn's flaring...that's a million dollar question. I've had tests, and everything has come back normal, so my GI has decided it's anxiety causing symptoms, and they changed the dose of the Effexor, which didn't change a thing. I think there's something going on in my system, but it's just not showing in tests. Though I might add that my bloodwork has been abnormal for months, and they haven't figured out why certain labs are high. It makes it harder to figure out what's going on when new things like the blood clots happen and new meds are added to the ones I'm already on.
It's possible also that depression is causing the fatigue. I'm not in a good place right now...things aren't going well in my life, and health issues just compound the problems that are already there.
Thanks for listening, and I appreciate any advice you may have.
31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin