Hey Pat, I'm glad you have found something spelled r-e-l-e-i-f! I see Neurontin listed in your signature. My former rheumatologist had put me on Neurontin - which I tried for a month and felt worse on it - absolutely lethargic with weight gain and nightmares. And no help with the pain. He then wanted to switch me to Lyrica, but said it was in the same family, so I declined.
My current rheumy said she didn't think the Lyrica would work for me if I didn't have a good result with the Neurontin. Keep us posted - maybe I'll try the Lyrica after all. I just had a negative ANA come back after 3 yrs of positives. Not sure whether it's because of the 10 mos. on Plaquenil or the result of going Gluten Free.....but I asked the same question....why do I still feel so crummy?......and was also told Fibro. All I know for sure is that the fibro (which I was dx'd with over 10 years ago) didn't used to feel this bad!
Glad you're feeling better!
diagnoses: mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins