finally settling on the additional lupus diagnosis

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New Member

Date Joined Jun 2009
Total Posts : 18
   Posted 11/21/2009 6:06 PM (GMT -6)   
For years we have danced around Lupus. It isn't that different symptomatically or treatment wise to SREAT (steroid responsive ecephalopathy with autoimmune thyroiditus) although it is a lot less rare.

It seems now to be a diagnosis. And with this diagnosis comes Cellcept. Methotrexate was discontinued last year because of liver damage. The steroids with the IVIG are barely holding their own. And so my wife beganCellcept yesterday.

I know that it takes months to really prove effective. But I was wondering for all the cellcept users out there.
How long did it take until it started making tiny differences?
I know there is a lot of joint, kidney and most importantly brain damage from the Lupus and the SREAT, and so I am a bit impatient.

Can anyone give me ideas on a timeline with Cellcept?

Thanks in advance.

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 11/21/2009 6:11 PM (GMT -6)   
CellCept started helping me within a couple of weeks. Good Luck to you both!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Regular Member

Date Joined Dec 2006
Total Posts : 185
   Posted 11/21/2009 10:26 PM (GMT -6)   
i am waiting for my insurance to apprive my cellcept which should be monday... i will be in the same boat as you and i am eager to get things going
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. 9 tia's and one pontine stroke,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg

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