Sick and tired of being sick and tired

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alli sunshine
Regular Member

Date Joined May 2009
Total Posts : 40
   Posted 11/22/2009 9:47 PM (GMT -6)   
I have posted here on and off for a while. I do not have a diagnosis, but do have family history of RA, high ANA, Raynauds, stomach inflamation and gastroparesis, joint pain, anemia, etc. I think I may be having what you all call a flare. I am exhausted, feel sick, chilled, have sores in my mouth, and pain. I am so sick of feeling this way. I need to go to a podiatrist before I see my rheumy again. I keep putting it off due to health issues with my kids. When I last saw my gp a couple of weeks ago, she said the report from the rheumy said that I did not have a diagnosis, but I needed to be closely watched due to all of the above issues.

Without a diagnosis, is there anything that I can do to feel better? Can the doctor do anything? I spent the holidays last year feeling awful- I was severely anemic at the time and severely vitamin D deficient. Still working on the anemia, though it is better. Any ideas or thoughts would be appreciated. I am tired of this...

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 11/23/2009 7:12 PM (GMT -6)   
Hi Alli,
I'm sorry you are going through this. It can become very frustrating without a diagnosis. I hope your doctor is at least treating the symptoms.

For the sores in your mouth...there's something called swish-n-swallow the doctor can prescribe that will help that...but its better to spit it out instead of swallowing it.

For your stomach problems...a soft diet helps me.

The dark grape juice will help build your blood up a bit and vitamin B-12 shots

An electric blanket on the bed will help some with the joint and other pain....sometimes a good soak in a tub of warm water helps.

I hope you get some answers and relief soon. Oh, avoid the sun as much as possible and get plenty of rest. Take care and update us. You will be in my thoughts and prayers.


Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 11/23/2009 8:50 PM (GMT -6)   
Hi Alli,

Being in dx limbo is so hard, Babs gave you some great advise. The only other thing I would like to add is, if your doctor is not treating your symptoms or taking your pain, etc serious it may be time for a new rheumy. I know it may sound drastic but sometimes that's what it takes. Many of us see multiple rheumy's before we get answers. I do hope you get some relief soon. Take care and keep us posted on how you are doing. And always, feel free to ask more questions. :-)
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 11/24/2009 11:57 AM (GMT -6)   
I was treated with plaquenil and prednisone prior to my diagnosis. My rheumy know something AI was going on with me but didn't give me a diagnosis until she was positive it was lupus.

Stacie's right - it might be time for a new rheumy. And Babs' suggestions are terrific - I even do most of them to this day.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 11/24/2009 7:24 PM (GMT -6)   
Everyone has given you wonderful advice; the only thing that I would add is that if you're able to, you might want to try the gluten free diet for a week or two to see if it helps you feel better. The first time I went gluten free (for 9 days) I was amazed at how much better I felt. Not all of my symptoms went away, but several of them got significantly better. I definitely had more energy.

When I started eating "normally" again, I developed horrible sores all over the inside of my mouth, violent headaches, vertigo, extreme fatigue and really nasty gastric symptoms. Later I found out that I do have celiac disease along with lots of other autoimmune diseases, so now I've gone gluten free for good.

Mouth sores, anemia, vitamin D deficiency, gastric problems, exhaustion....those can all be associated with celiac disease (as well as other AI disorders). I think the gluten free diet is worth a try....but it's just a suggestion.

If you're interested, check out this link for helpful hints:

I really hope you find some answers and start to feel better soon!
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

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