A positive ANA is just one clue in the big lupus puzzle and every dr. who deals with Autoimmune Illness, knows that and that ana titres come and then go, Plus: a. lupus is the great imitator b. it is a dx. of rule everything out first.... and c. they don't know what else to call it! My dr. commented that well, my ana was only "low positive" when he first repeated it and I said... Your point? Since he still writes lupus on all my lab requisitions, I don't think it really mattered. And I was frankly, too sick to care! I have bone density scans every year because prednisone is linked to osteoporosis, and I take calcium with d every day. My recent Vitamin D level was only 30, (anything below 39 is considered low) so I was told to take at least 1200IUs every day, double what I was taking. I bought the gummy vitamin d's that have 1000IUs per gummy, and I giggle that it is a fun way to take a pill after I swallow the 8 meds I take twice a day. I was diagnosed with Antiphospholipid Antibody Syndrome, (APA) back around 1995), so I had a headstart when I needed to go back to a rheumy for a diagnosis beyond that. Keep reading these postings, and scan back through the old threads, you will learn so much and see that what you are going through, is nothing but what way, way, too many of us went through for a diagnosis, or non diagnosis or ____________fill in the blank. I handed my dr. a timeline of my illness from the first stillborn baby, and infection, two pages that I narrowed down from 10 and he said..... after reading in front of me.... What do you want me to say? You have lupus. So I really was one of the lucky ones (I've always thought it helped that I was a nurse and had worked with my drs), who didn't have to think I was LOSING MY MIND for too long once I started getting ataxic and falling. I had to go through the ... Sue, are you depressed? You aren't depressed?? Let's give you some paxil just to be sure......Are you SURE you aren't depressed. It must be menopause. Ok... am I falling because I am depressed or am I depressed because I am falling???? Ok, dr. (my GYN), since when is falling a symptom of menopause????? No, a clue, I don't get a period anymore........sue.... these antibody levels aren't normal... you need to see a rheumatologist. Hmmmnnnn, I had already seen one 10 years previously, so I went back. Looking back, I am really grateful I had the sense to document anything, and ask for copies of everything. Hope you feel better soon,
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.