My husband recently woke up with severe stomach/lower abdominal pain and we had to take him to hopsital by ambulance as he was in such severe pain. He had a perferated diverticultis. The surgeon told us that high doses and long term usage eats away at your colon. He had to have a portion of his colon removed and has a colostomy. They are telling us it is reversible after it heals, but he has been down since August 14, and they have changed his meds up so much, he has lost 70 lbs, and is now in rehab. He is still very weak and cannot get out of bed without two people lifting him and getting into a wheelchair to therapy.
This has really been a real mystery, and they do not have a diagnosis as to what is causing his weakness. He cannot swallow food and also has a feeding tube now. Too many complications to identify, I guess. They initially thought he had Guillian-Barre Syndrome, because his muscle enzymes (cks) are so high and there was some neuropathy. Did all this happen as a result of the surgery? We just don't know. He used to be the "life of the Party" always laughing and seeing the bright side of things. He has really sunk into a state of depression and is starting to lose hope.
I do not know if this is a common thing with lupus and RA,but is the most mysterious disease and complications I have ever heard of.
We feel so lost. Tons of dr's and neurologist have been involved and they are telling us he is really an Enigma........
lupus/ RA- prednisone, plaquinel, prevacid, lortab, IVIG (intravenous), imuran, B-12, lexapro.