I saw my neurologist recently; my latest MRI is STILL clean, nothing obvious! So he says that I don't have MS, and that my lupus has no CNS involvement or it would show in the MRI and/or the EEG, which was also normal. The bloodwork from my tests for Lyme disease and B12 deficiency did not show up, so they're trying to trace that down....I see him again next week to discuss those results.
He's of the opinion that all of my symptoms (vertigo, double vision, peripheral neuropathy, ringing in ears, brain fog, ataxia, muscle spasms, etc) are caused by my fibromyalgia. I reminded him that my double vision is vertical
double vision and asked if fibro would do that....he said probably not (with a little frown to remind me that I shouldn't argue with him because he's the doctor).
Don't get me wrong...I'm thrilled that my MRI is clean and that there is no obvious brain damage!! I'm just frustrated because I'm still in diagnostic limbo.
My rheumy seems to think that all of my symptoms are the result of my current lupus (rhupus?) flare....but if the EEG doesn't show signs of CNS lupus, I guess this is not the case??
I don't know....I'm just confused and I want to understand what is wrong with me! It's not normal to suffer from vertigo like this...to feel like your head is filled with helium and floating 4 feet above your shoulders....is it?
My PCP thinks I need to see another neuro to get a second opinion, but I'm SO tired of doctors right now.
This is just a vent, sorry about
that...thanks for listening.
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.
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