I am new to this site, I have read alot of the post when doing reasearch on my conditions. I don't know anyone that has what I have and no one I talk to really understands, I feel alone I guess. I am 30 years old, I have Tumid Lupus (now suspected SLE), Rhuematoid Arthritis, dermatomyositis, Optic Neuritis, and vasiculitis. Also have microscopic colitis, which is a IBD. I have been "sick" for a quite few years now, but it all came crashing down on me this year...everything decided to flair at once (got so sick and was down to about 103 lbs, horrible rashes, hair falling out, too many to list), after a skin biopsy and the right blood tests, I was finally diagnosed after all these years (my new rheumy is wonderful) and it was no longer "in my head". I was ready to fling myself out the window if I heard that one more time...which I am sure quite a few of you have heard before. My rheumy started me on 20 mg prednisone (also the eye drop version for the optic neuritis) about August and it helped a bit, but the side effects are just downright wrong lol. Well it just so happens that the prednisone is affecting my stomach condition and not working too well ( I am in the middle of a horrifying flair right now), and I was informed that long term use is really not good, so to try and relieve all my symptoms, they are starting me on methotrexate injections once a week, so I can eventually be taken off the prednisone...... I am a little scared of taking this from what I have heard, but I have been in so much pain and can't handle too much of it anymore, I work a full time job that requires all of my brain power (which is lacking as of late), and it is so hard to make it through the day now, so I will try just about anything at this point. Anyone have any exp with this drug?
(Boy I needed to unload that....)
Post Edited (lunacygotme79) : 12/2/2009 11:18:32 AM (GMT-7)