Vanessa, I'm so so sorry that you're going through this! I too have multiple autoimmune diseases. I'm currently holding down two jobs (one full time the other part time) but am thinking that I need to get rid of the part time job at least.
I'm a scientist at a major research university; I support a NASA mission (that's my full time job). This job has been ideal for me because my bosses and co-workers are wonderful
people and they are trying to help me as much as possible.
I've been allowed to work from home most of the time lately. This works well unless I'm assigned a certain type of task that requires me to use special computers that are not accessible from the outside. Fortunately they've only been assigning me this type of task about
once every 9 weeks or so. It takes me a few weeks of off-and-on work to finish the job, but I can still work from home more than half the time.
My part-time job is teaching math at a local community college. This semester I teach on Monday nights and Saturday mornings. Of course I have to be physically present to teach, LOL! I'm in a wheelchair now so I use an overhead projector.
When I got both of these jobs (11.5 years ago for the full-time job and 9 years ago for the part-time job) I was fairly healthy, or so I thought! I was just diagnosed with most of these illnesses in the past 18 months.
I may have to go on disability soon. I've been having embarrassing moments where I can't do simple arithmetic in my head anymore....it scares me. I've forgotten a couple of VERY important tasks recently at my main job. I'm getting closer and closer to the point where I may have to quit both of my jobs, if my brain fog gets worse.
There probably are jobs that are better for someone with our kinds of illnesses than the kind of brain-intensive, math-intensive jobs that I have!!
I do hope you find some type of job that will work out for you!!
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.
Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAPautoimmunediseasesgfliving.blogspot.com
Post Edited (nasalady) : 12/7/2009 11:26:16 AM (GMT-7)