Jobless yet again :(

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New Member

Date Joined Jan 2005
Total Posts : 9
   Posted 12/7/2009 11:21 AM (GMT -6)   
I am finding it very difficult to hold a job! I don't know how you guys can do it. I am on disability, but find it emotionally frustrating not working. I love to work. I'm young and find it humiliating not being able to work. I do volunteer work as often as I can. I just don't find it rewarding enough. Maybe because I'm young, and when you meet people, one of the first questions is "what do you do?" Looking perfectly healthy, and trying to explain that you're sick? Hmm...Anyway, this post comes after having to leave yet another job due to another flare. I guess I am here to ask what kind of jobs are suitable?
I have been suffereing from Lupus, Rheumatoid, Fibro, Celiacs, Raynauds, Sweet's Syndrome, etc...for more than 12 years now. And for all these years now, I've been let go from quite a few jobs because of all the flares. I have never been in a full remission state.  I try not to let my illnesses get me down, but after this last flare...kinda hard.
Thanks for reading, and hope to hear some responses on what kind of positions are ideal.

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 12/7/2009 1:09 PM (GMT -6)   
Vanessa, I'm so so sorry that you're going through this! I too have multiple autoimmune diseases. I'm currently holding down two jobs (one full time the other part time) but am thinking that I need to get rid of the part time job at least.

I'm a scientist at a major research university; I support a NASA mission (that's my full time job). This job has been ideal for me because my bosses and co-workers are wonderful people and they are trying to help me as much as possible.

I've been allowed to work from home most of the time lately. This works well unless I'm assigned a certain type of task that requires me to use special computers that are not accessible from the outside. Fortunately they've only been assigning me this type of task about once every 9 weeks or so. It takes me a few weeks of off-and-on work to finish the job, but I can still work from home more than half the time.

My part-time job is teaching math at a local community college. This semester I teach on Monday nights and Saturday mornings. Of course I have to be physically present to teach, LOL! I'm in a wheelchair now so I use an overhead projector.

When I got both of these jobs (11.5 years ago for the full-time job and 9 years ago for the part-time job) I was fairly healthy, or so I thought! I was just diagnosed with most of these illnesses in the past 18 months.

I may have to go on disability soon. I've been having embarrassing moments where I can't do simple arithmetic in my head scares me. I've forgotten a couple of VERY important tasks recently at my main job. I'm getting closer and closer to the point where I may have to quit both of my jobs, if my brain fog gets worse.

There probably are jobs that are better for someone with our kinds of illnesses than the kind of brain-intensive, math-intensive jobs that I have!!

I do hope you find some type of job that will work out for you!!
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Post Edited (nasalady) : 12/7/2009 11:26:16 AM (GMT-7)

Regular Member

Date Joined Dec 2009
Total Posts : 34
   Posted 12/7/2009 3:42 PM (GMT -6)   
Sorry to hear that you are jobless is so very hard sometimes to work...I know :) .  I work in the IT field and my co-workers depend heavily on me, I am no longer able to lift the servers,printers ect.. anymore ( my boss is the only one that knows my situation and is very good about it, I have been there almost 3 years). I am only 30 and it seems my situation is getting worse by the month, but I know how you feel about much as I need a break (I stuggle to get ready and get to work everyday) I would feel odd not working. You could try working from home (find a repbutale work at home company) What kind of work did you do before?

Diagnosed 2009: Lupus (SLE);Rheumatoid Arthritis; Dermatomyositis; Optic Neuritis; Behcet's syndrome; Microscopicolitis; Chronic Gastritis; Cryptitis
Meds: Prednisone 20mg daily, starting Methotrexate injections once a week 12/11/2009, Prenisone eye drops daily.

Post Edited (lunacygotme79) : 12/7/2009 1:48:24 PM (GMT-7)

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 12/8/2009 10:06 AM (GMT -6)   

Have you tried working for a temp agency? You'd have more flexibility in turning down a job when you're in a bad flare. You can also ask for part-time temp jobs. You might not get the socialization you want with this kind of job, so perhaps something half-time could work. I'm out of the job market.

Perhaps if you tell us what kind of work you've done in the past, or what you love to do, we'd be in a better position to help you. You do need to avoid stress and standing for a long time.

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex

New Member

Date Joined Jan 2005
Total Posts : 9
   Posted 12/8/2009 10:35 AM (GMT -6)   
Thanks for the responses. I have done all sorts of jobs. I have worked in a bakery, receptionist, customer service rep, cleaning, waitressing, bartending, etc. I've had a lot of different jobs. As for what I love to do, it's a physical job. I know that it's not the best for my body, but it's what I enjoy. I plan to go to school within the next two years, but don't know what I want to do yet. I'm a single parent, and my daughter has health problems as well, that's why the delay in my education. Hopefully within the next two years, our health will be a little better.

Regular Member

Date Joined Oct 2008
Total Posts : 119
   Posted 12/8/2009 10:52 PM (GMT -6)   
I too am looking for a new job in the new year.  It simply isn't practical healthwise for me to do my job anymore.  I have worked as a cook for the past nine years..VERY physical and mentally stressful work.  I have cooked for groups in the military from as small as 15ppl up to 500 people per meal.  I have been a supervisor and helping to train people as well.  We lift heavy loads of food all the time, and it's so physically demanding.  Until a few years ago, my body was more than up to the task.  It has been a hard struggle for me to admit that I really shouldn't be doing this to myself anymore.  I spend most days coming home in pain, and just spending all my time away from work recooperating to go back to work..then after having pushed it from busy time at work to busy time I usually end up crashing in between groups that we body goes into flares..Not good.  I have had many of the medical professionals in my life tell me that I really shouldn't be doing this anymore..that I should be looking into something else.  I totally understand how hard it is to move on to a new job.  I am there right now. I am excited in one way to move onto something different that hopefully I can excel at, and yet not be constantly trying to live to work, and nothing else, ya know?  It's going to be a challenge to find something different though.  I have become VERY good at my job.  It's just my body that doesn't want me to do it anymore.  I will miss it.  I just wanted to letcha know that there are "others" (meaning me, and probably more people) out there that can empathize.  I wish you the best in finding something new. 
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops
<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 12/9/2009 6:20 AM (GMT -6)   
I don't work and am on disability I understand how isolating it can feel not to have co-workers to socialize with but you must do what is best for your health. I am in school studying library science in the hopes that someday I will have a remission and can work. I wish you luck in searching for a new position but honestly if your health suffers when you work maybe you need something else to occupy your time.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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