I have been doing pretty well, lately. They have been trying to taper my prednisone dose (unsuccessfully)- still at 4mg. They want me completely off of it. Everytime I go below 4mg, I start feeling bad. Hopefully, tapering me 1mg at a time will work.
Anyway, I have a question regarding a weird thing that is happening. I told my rheumy about it, but she didn't know what to make of it. It started about once every couple of days or so, but I will wake up in the middle of the night, and my hand from the wrist down will be numb, tingly, and cold. It isn't my whole hand, though, just my pinky finger and the one next to it. I wake up and have to rub my arm and hand to wake it up. It happens to one hand or the other, never both. I thought at first I was just laying on it wrong, but I'm noticing now that I'm definitely not laying on it and it continues to happen. It started just once every couple of days or so. But last night, I woke up 3 times with it happening!
I looked up Carpal Tunnel, and it only affects the thumb, pointer and middle finger from what I'm reading. So, I'm left thinking that it could possibly be related to my UCTD? It doesn't seem to be Raynaud's Syndrome (which hasn't appeared yet for me) but then again, I haven't seen Raynaud's only read about it.
Any ideas? It's starting to affect me mainly because I wake up 2 or 3 times a night and this week it has been pretty frequent.
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Prednisone, Vitamin D, Wellbutrin, Glucosamine Chondroitin